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Cancer Explained
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Two options, and no way to hold them side by side.

Treatment choices are usually explained one at a time, in a room where you are already trying to take in something enormous. By the time you get home you have half of one option and a fragment of the other. This worksheet gives them each a column, and gives you the questions that fill the rows in.

It does not score the options or tell you which to pick. Nothing could — the answer depends on what you want your life to look like, and no worksheet knows that. What it can do is make sure you are comparing the same things about each option, and that the differences are visible on one page.

Nothing you type here is saved, sent or logged. Close the tab and it is gone, so print or copy the sheet before you leave. If you have not been to the appointment yet, print it blank and write on it there.

1. What are you choosing between?

Name the options you have actually been offered. If waiting is on the table — and it often is, sometimes under a name like active surveillance — give it a column too. A choice with nothing to compare against is not really a choice.

Option 1
Option 2

2. What matters most to you?

Pick up to 3. These print at the top of the sheet, where your care team will see them. Two treatments with similar survival numbers can differ enormously on these, and nobody can weigh that for you.

3. Fill it in together

You are not expected to know these answers. Open what to ask on any row and put the question to your team — that is the part of this worksheet that does the work.

What this option is

What it is called

What it is meant to achieve

What it asks of you

How long, how often, and where

Recovery and time off

What it might give you

The benefit, in actual numbers

How solid that number is

What it might cost you

Side effects most people get

Risks that are serious or do not go away

Fertility, intimacy, and the long term

Cost and coverage

What happens next

If it does not work

Whether you can change your mind

What happens if you wait, or do nothing for now

4. Take it with you

Bring somebody with you if you can. Two people remember roughly twice as much of an appointment, and the second person is usually the one who notices the question that did not get answered.

One thing worth knowing before you go in

Benefit is usually described as a percentage, and percentages hide the size of what is being offered. “This reduces your risk of recurrence by a third” sounds enormous. If the risk was 12 in 100, a third of it is 4 people in 100 — real, worth having, and a different decision from the one the percentage implied. Asking out of 100 people like me, how many are helped by this is the single most useful question on the sheet, and most teams are glad to be asked it.

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This worksheet is a way of organising a conversation, not medical advice, and it cannot tell you what any option would do for you specifically. Your care team is the source of the answers — the worksheet only makes sure the questions get asked. If something here is wrong or unclear, tell us at /corrections.