Patient and caregiver usability
Help us make cancer information easier to use
In a short session, you read one page and show us where you would look for practical and safety information. We test the page—not you.
What a session includes
- Explain what the page says the concern means.
- Find whether the situation may be urgent and who the page says to contact.
- Find what information the reader should have ready.
- Identify what the reader should not change on their own.
- Find useful questions for the care team.
- Point out wording that feels confusing, alarming, or falsely reassuring.
Privacy and boundaries
We do not need your medical records, diagnosis details, account numbers, or names of clinicians. Participation is voluntary, you may stop at any time, and feedback is not medical advice or clinical review.
If reading an emergency or crisis page may be distressing, say so and we will use a different page or stop. A usability session is not a crisis service: in a mental health crisis, call or text 988; in an emergency, call 911.
How results are used
We record where readers hesitate, misunderstand, or cannot find an answer. If several readers misunderstand safety information, we revise the page and re-check it against its cited sources. We do not claim that a page is medically reviewed because patients tested its usability.
To share a personal experience for possible publication instead, use the first-hand interview program.